For information on breast cancer (e.g. myths, research, risk, support, statistics), please scroll down. If you prefer a website that has lots of style (and much less content!), you probably won't like this no-frills webpage.

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  • This page is intended mainly for members of the Breast-Cancer Mailing List (BCML), and provides links to information about issues that have been discussed from time to time on the BCML. The BCML can be regarded as "The Ultimate Support Group" (and, see also, Response to a journalist). The BCML is an international mailing list, although a great majority of subscribers are located in the USA. For some speculations about possible reasons for such membership, see: Re: About List membership (a puzzle).
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  • The design and content of this page has been guided, in relation to content and navigation (but not style!), by the 'red flag' criteria of Scott C. Matthews, M.D. and colleagues, and by guidelines such as the Evaluation Criteria based on The Health Summit Working Group's criteria for assessing the quality of Internet health information.
  • The selection of links, and the comments appended to them, are based solely on my own criteria of quality, interest and relevance. I know that the page lacks pretty images, and is large, but it's much easier for me (obviously, I'm not a professional website designer!) to maintain a single no-frills webpage like this one. Think of it as a 'signpost', intended to help people to find (or, for myself, to 're-find') online information and support.

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    Index: [C-D][E-K][L-Q][R-Z]
    [Go to end of Index]

    Abbreviations
    Abortion myth
    Acor.org resources
    Advanced BrCa
    Affluence
    Antiperspirants myth
    Anxiety
    ASCO abstracts
    BCANS
    Benign breast disease
    BrCa (more links1)
    BrCa (more links2)
    BrCa genetics
    BrCa in men
    BrCa risk1
    BrCa risk2
    BrCa risk3
    BrCa risk4
    BrCa risk reduction1
    BrCa risk reduction2
    BrCa risk reduction3
    BrCa risk & abortion
    BrCa online support
    Breast cancer1 (BrCa1)
    Breast cancer2 (BrCa2)
    Breast cancer3 (BrCa3)
    Breast-Cancer List
    BreastCancer.Net
    Breast disorders
    Breast density
    Breast feeding
    BSE

    Return to [A-B]

    Can. Cancer Society
    Can. Health Network
    Canadian websites
    CancerBACUP (UK)
    Cancer fatigue
    Cancer pain
    Cancer statistics1
    Cancer statistics2
    Cancer statistics3
    CBCRA
    CBCN
    CCS
    "Chemobrain"
    Chronic fatigue
    CIS (Canada)
    Clinical Trials
    Cochrane Reviews
    Cognitive dysfunction
    Communication1
    Communication2
    Communication3
    Complementary1
    Complementary2
    Complementary3
    Coping with fear
    Curability
    Decision aids1
    Decision aids2
    Decision-making
    Decision maps
    Depression
    Diagnosis coding
    Dietary1
    Dietary2
    Dietary supplements
    Dioxin
    Disclaimer
    Dragon Boating
    Drugs1
    Drugs2
    Drug database
    Drug side effects

    Return to [A-B]

    Editor
    Emotions
    Emotional recovery
    Estrogen receptors
    Exercise & BrCa risk
    Exercise & lymphed.
    False positive
    Fatigue1
    Fatigue2
    Fertility
    FORCE
    Free journals
    Fruits & Vegs
    Gail model
    Genetic testing1
    Genetic testing2
    Glossary
    Guidelines
    Harms of herbals
    HDC/SCR
    Health communic.1
    Health communic.2
    Health communic.3
    Health resources1
    Health resources2
    Health resources3
    Herbals1
    HER2 Support Group
    Hereditary BrCa
    Humor therapy
    IBC
    ICD codes
    Inflammatory BrCa
    Interesting research1
    Interesting research2
    Journals

    Return to [A-B]

    Lab tests
    Lymphedema1
    Lymphedema2
    Lymphedema3
    Mailing lists
    Male BrCa
    Mammographic density
    Mammography1
    Mammography2
    Mammography3
    Marin County
    Medline (PubMed)
    Medspeak
    Metastatic BrCa
    Microwave myth
    Minority health
    Myriad update
    Myths1
    Myths2
    Myths3
    Nausea
    NICE
    Nutrition1
    Nutrition2
    Obesity
    Open access initiative
    Open journals
    Organochlorines1
    Organochlorines2
    Pain
    Patient resource
    Personality myth
    Phytoestrogens
    Post-mastectomy pain
    Prevention Paradox
    Preventive nutrition
    Proph. mastectomy
    PubMed (Medline)
    Return to [A-B]

    Raloxifene
    Research of interest1
    Research of interest2
    Risk communication
    Risk estimation
    Risk reduction1
    Risk reduction2
    Risk reduction3
    Screening1
    Screening2
    Screening3
    Search
    Search trials
    Self-examination
    Sexuality
    Social support
    Soy foods
    Specificity
    Stage IV
    Statistics1
    Statistics2
    Statistics3
    Stress myth
    Supplements
    Support1
    Support2
    Support3
    Supportive care
    Survival
    Terry Fox
    Tobacco1
    Tobacco2
    Translations
    Transplants
    Trials
    Unconventional1
    Unconventional2
    Unconventional3
    Various cancers1
    Various cancers2
    Vegetables
    Vomiting
    Wellspring


    Return to [A-B]



    The current counter number is: Counter Number


    Jim Till's Links

    University of Toronto c/o Ontario Cancer Institute
    University Health Network
    610 University Avenue, Room 9-416
    Toronto, Ontario M5G 2M9
    Canada

    Send an email message to:


    Established: 1996
    Last modified: 26 June 2009



    Some Links

    Main Headings:

    Some myths about breast cancer [#1][#2][#3]
    Support for people who have cancer [#1][#2][#3]
    Interesting research [#1][#2]

    Information about breast cancer [#1][#2][#3]
    More links about breast cancer [#1][#2]
    Information about transplants, "chemobrain" [#1][#2]

    Links about lymphedema, Dragon Boating [#1][#2][#3]
    Information about fatigue, nausea [#1][#2]
    Information about fears, emotions, pain [#1][#2][#3]

    Information about BrCa risk [#1][#2][#3][#4]
    Information about the Gail model of BrCa risk [#1]
    Information about BrCa risk reduction [#1][#2][#3]

    Information about BrCa genetics [#1][#2]
    Some links about screening, mammography [#1][#2][#3]
    Organochlorines & BrCa [#1][#2]

    A few links about risk communication [#1]
    A few links about decision aids [#1][#2]
    Information about various kinds of cancer [#1][#2]

    Information about drugs [#1][#2]
    Tobacco-related issues [#1][#2]
    Cancer statistics [#1][#2][#3]

    About interactive health communication [#1][#2][#3]
    Links about "unconventional therapies" [#1][#2][#3]
    Links about dietary-related information [#1][#2]

    Links about herbal therapies [#1]
    A few links about soy-containing foods[#1]
    Some links about 'humor therapy' [#1]

    Health-related resources [#1][#2][#3]
    Some Canadian organizations [#1][#2]

    Ways to translate a webpage [Translate]
    Information about the editor of this website [Editor]
    Please read this disclaimer [Disclaimer]
    Search my Tripod webpages [Search]



    Some myths about breast cancer #1 [links last verified 24 Feb 2009]:
    Cancer myths: Via the website of the Canadian Cancer Society [Last updated 16 July 2008]
    16 common myths about breast cancer: by Nicole Fawcett, media coordinator, University of Michigan Comprehensive Cancer Center, 26 Sep 2006
    Urban Legend: Plastic-Tac-Toe: Via the snopes.com website: "Claim: Research has proved that microwaving foods in plastic containers releases cancer-causing agents into the foods. Status: False" [Last updated 3 Apr 2007]

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    Some myths about breast cancer #2 [links last verified 24 Feb 2009]:
    Study debunks personality link to breast cancer: Commentary in the Toronto Star by Will Dunham, Reuters, January 29, 2008. The publication about the study is in: JNCI, published online January 29, 2008.
    Stress and breast cancer: a systematic update on the current knowledge: Abstract of an article in Nat Clin Pract Oncol 2006(Nov); 3(11): 612-20. An excerpt: "Despite the heterogeneity in the results obtained, it is concluded that stress does not seem to increase the risk of breast cancer incidence. Whether stress affects the progression of breast cancer is still unclear".

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    Some myths about breast cancer #3 [links last verified 12 Apr 2009]:
    Abortion Does Not Add to Breast Cancer Risk: By Crystal Phend, Staff Writer, MedPage Today, April 23, 2007. First sentence: "Neither abortion nor miscarriage contributes to breast cancer risk, according to a prospective observational study of more than 100,000 women". (So, the "abortion myth" isn't supported by credible evidence).
    Antiperspirants/Deodorants and Breast Cancer: Questions and Answers: Fact Sheet from the NCI-US, last reviewed April 1, 2008. (Key Points: "There is no conclusive research linking the use of underarm antiperspirants or deodorants and the subsequent development of breast cancer"; "Research studies of underarm antiperspirants or deodorants and breast cancer have been completed and provide conflicting results")

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    Support for people who have cancer #1 [links last verified 26 Jun 2009]:
    Association of Online Cancer Resources: The Acor.org site provides access to a large number of cancer-related mailing lists
    Google rankings of popular electronic support sites for those dealing with breast cancer
    Support groups don't extend survival of metastatic breast cancer patients, Stanford study finds: News release, Stanford University Medical Center, 22 July, 2007
    Effects of supportive-expressive group therapy on survival of patients with metastatic breast cancer : a randomized prospective trial: Abstract of the article by David Spiegel and colleagues (see above news release), Cancer 2007(Epub Jul 23)

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    Support for people who have cancer #2 [links last verified 26 Jun 2009]:
    Caring Voices: An online community for breast cancer survivors. An initiative of the Survivorship Program, Princess Margaret Hospital, Toronto, Ontario
    The Healing Journey Program: A program designed for people who want to learn how to help themselves when they have cancer, or other serious chronic diseases. [Also based at the Princess Margartet Hospital, Toronto]
    HER2 Support Group Forum: Published and maintained by HER2 Support Group Org, Carlsbad, California

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    Support for people who have cancer #3 [links last verified 8 Aug 2008]:
    Eradicating Tumors Is Not Enough; Cancer Care Providers Need to Proactively Address Patients' Psychological and Social Needs As Well: News release about a report from the Institute of Medicine, Oct. 23, 2007
    Cancer Patients Describe What They Seek From Support Groups: News release about an article in Psychosomatics 2007(Oct); 48(5): 426-432 [Abstract of the article in Psychosomatics]
    Coping with Cancer: Sexuality & Fertility: Via the Oncolink website
    Who Needs Breasts, Anyway?: By Molly Ivins, TIME Archive 2002 (Molly Ivins was found to have Stage III inflammatory breast cancer in 1999. She died on January 31, 2007. She was 62)

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    Interesting research #1 [links last verified 8 Aug 2008]:
    BreastCancer.Net: This website is an excellent source of recent news about breast cancer research
    ASCO Abstracts Search: Search engine that permits abstracts presented at meetings and symposia of ASCO to be searched
    Canadian Breast Cancer Research Alliance: Provides access to information about research supported by the CBCRA

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    Interesting research #2 [links last verified 28 Oct 2008]:
    Cancer.gov Clinical Trials Search Form: Via the cancer.gov website of the NCI-US
    OntarioCancerTrials.ca: A database of all cancer trials in Ontario

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    Return to Index

    Information about breast cancer #1 [links last verified 8 Aug 2008]:
    About the treatment of breast cancer (from the NCI-US): Includes general information about breast cancer
    Questions and answers on breast cancer: A guide for women and their physicians: Based on The Canadian Clinical Practice Guidelines for the Care and Treatment of Breast Cancer, CMAJ Special Supplement (includes access to updated guidelines)
    Information about Inflammatory Breast Cancer: Established by Pete Bevin and Menya Wolfe
    Inflammatory Breast Cancer Foundation: Specifically targets IBC

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    Information about breast cancer #2 [links last verified 18 Nov 2008]:
    Benign breast disease and breast cancer tutorial: by William H. Wolberg, M.D. (last updated 30 Jan 2006)
    A Review of the Diagnosis and Management of Male Breast Cancer: Abstract of a review in The Oncologist 2006(Aug); 10(7): 471-479. An excerpt: "In this article, the latest information on the epidemiology, biology, and treatment of male breast cancer is reviewed."
    Epidemiology of Male Breast Cancer: Cancer Epidemiology Biomarkers & Prevention 2005(Jan); 14: 20-26. "Overall, the epidemiology of MBC presents similarities with the epidemiology of female breast cancer".

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    Information about breast cancer #3 [links last verified 24 Feb 2009]:
    Information about metastatic breast cancer: The bcmets.org website includes access to a mailing list (established by Pete Bevin and Menya Wolfe)
    Club-Mets-BC webpage: Provides access to an online support group for those with metastatic breast cancer (part of Gilles Frydman's ACOR website)
    AdvancedBC.org: A resource for people living with advanced breast cancer (established by Musa Mayer)

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    Return to Index

    More links about breast cancer #1 [links last verified 1 Mar 2009]:
    Breast-Cancer Mailing List: Provides access to this resource for information, support and advocacy
    Search the Archives of the Breast Cancer Mailing List: Can be very helpful (e.g. as a source of questions to ask an oncologist)
    Breast Cancer Action Nova Scotia (BCANS): Includes access to a very active set of Discussion Forums
    Online support (breast-cancer): Google's ranking of online BrCa support sites
    More about online support (breast cancer): Alexa's ranking on online BrCa support sites (Alexa and Google use different methods to obtain ranks, but both utilize data obtained from the Open Directory Project)

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    Return to Index

    More links about breast cancer #2 [links last verified 1 Mar 2009]:
    NICE guideline on early and locally advanced breast cancer: Diagnosis and treatment clinical guideline from the National Institute for Health and Clinical Excellence (UK), February 2009
    NICE guideline on advanced breast cancer: Diagnosis and treatment clinical guideline from the National Institute for Health and Clinical Excellence (UK), February 2009

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    Information about transplants, "chemobrain" #1 [links last verified 1 Jan 2009]:
    Randomized Trial of High-Dose Chemotherapy With Autologous Peripheral-Blood Stem-Cell Support Compared With Standard-Dose Chemotherapy in Women With Metastatic Breast Cancer: NCIC MA.16: Journal of Clinical Oncology, 2008(Jan 1); 26(1): 37-43. "Conclusion: HDCT did not improve OS in women with MBC when used as consolidation after response to induction chemotherapy"
    Cochrane Review of HDC plus ABMT or SCT for metastatic breast cancer: Last assessed as up-to-date: March 16, 2007. Last sentence of reviewers' conclusions: "High dose chemotherapy with bone marrow or stem cell transplantation should not be given to women with metastatic breast cancer outside of clinical trials"
    Cochrane Review of HDC plus ABMT or SCT for early poor prognosis breast cancer: Last assessed as up-to-date: September 19, 2006. Reviewers' conclusions: "There is insufficient evidence to support the routine use of high dose chemotherapy with autograft for women with early poor prognosis breast cancer"

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    Information about transplants, "chemobrain" #2 [links last verified 22 May 2009]:
    Cancer-related cognitive dysfunction: Sponsored by the Oncology Nursing Society
    Neurotoxicology of chemotherapy in relation to cytokine release, the blood-brain barrier, and cognitive impairment: Abstract of a review in Oncol Nurs Forum 2008(Nov); 35(6): 916-20

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    Links about lymphedema, Dragon Boating #1 [links last verified 22 May 2009]:
    Lymphovenous Canada: Provides some good links
    Lymphedema Links: An extensive set of links about lymphedema

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    Return to Index

    Links about lymphedema, Dragon Boating #2 [links last verified 22 May 2009]:
    Lymphedema management: Abstract of an article in Int J Radiat Oncol Biol Phys. 2007(1 Mar); 67(3): 841-6
    Lymphedema and quality of life in breast cancer survivors: the Iowa Women's Health Study: Full text of an article in J Clin Oncol 2008(Dec 10);26(35): 5689-96

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    Return to Index

    Links about lymphedema, Dragon Boating #3 [links last verified 24 Feb 2009]:
    Moderators of the effects of exercise training in breast cancer patients receiving chemotherapy: a randomized controlled trial: Abstract of an article in Cancer 2008(Apr 15); 112(8), 1845-53
    Psychosocial experiences of breast cancer survivors involved in a dragon boat program: exploring links to positive psychological growth: Abstract of an article in J Sport Exerc Psychol 2007(Aug); 29(4): 419-38. See also: Dragons of hope: Boat racing improves lives of breast cancer survivors, Feb 1, 2008
    Breast Cancer Survivor Dragon Boat Teams: Via the Waves of Hope website, Canada
    Working Out During Breast Cancer Treatment: Journal Watch Women's Health, March 22, 2007

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    Information about fatigue, nausea #1 [links last verified 20 Jan 2009]:
    Information about fatigue and cancer: Via the cancer.gov website of the NCI-US
    About cancer fatigue, anorexia, pain (& more): Sponsored by the Oncology Nursing Society
    Causes and treatment of nausea and vomiting: Via the cancer.gov website of the NCI-US

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    Information about fatigue #2 [links last verified 18 Nov 2008]:
    Website about Cancer Fatigue: Sponsored by New York Online Access to Health (last updated 25 July 2008)
    Chronic Fatigue Syndrome: Via the website of the Centers for Disease Control and Prevention, Department of Health and Human Services, USA

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    Information about fears, emotions, pain #1 [links last verified 12 Apr 2009]:
    Information about anxiety disorder: From the NCI-US
    Depression: From the National Institute of Mental Health (USA)
    Depression in cancer patients: a critical review: Clinical Practice and Epidemiology in Mental Health 2007; 3: 2

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    Information about fears, emotions, pain #2 [links last verified 19 Mar 2009
    Cancer pain can be managed: From the NCI-US
    Cancer-Pain.org (from ACOR Inc.): Includes access to a Patients Forum
    Alliance of State Pain Initiatives: Affiliated with the Paul P. Carbone Comprehensive Cancer Center at the University of Wisconsin-Madison
    Post Breast Therapy Pain Syndrome: Via the CancerLynx website (maintained by Alexandra Andrews)

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    Information about fears, emotions, pain #3 [links last verified 20 Sep 2008]:
    Dealing with Breast Cancer Fears: Via the breastcancer.org website; includes information about coping with fear
    The psychological impact of cancer on patients' partners and other key relatives - a review: Abstract of an article in Eur J Cancer 2003(Jul); 39(11): 1517-24

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    Information about BrCa risk #1 [links last verified 20 Jan 2009]:
    FORCE (Facing Our Risk of Cancer Empowered): To improve the lives of individuals and families affected by hereditary breast and ovarian cancer (includes a Message Board, first established Dec. 31, 1998)
    The Risk of Cancer Risk Prediction: "What Is My Risk of Getting Breast Cancer?": J Natl Cancer Inst 2006(6 Dec); 98(23): 1673-1675. Excerpt: "Current breast cancer risk prediction models perform well for populations but poorly for individuals" ... "Because we still cannot predict accurately enough which individual woman will or will not develop breast cancer, there is much work yet to do in the field of cancer risk prediction".

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    Information about BrCa risk #2 [links last verified 20 Jan 2009]:
    What Are the Risk factors for Breast Cancer?: From the American Cancer Society
    Global Cancer Statistics, 2002: A review in CA Cancer J Clin 2005; 55:74-108. An excerpt: "The most prevalent cancer in the world is breast cancer (4.4 million survivors up to 5 years following diagnosis). There are striking variations in the risk of different cancers by geographic area".
    Proportion of Invasive Breast Cancer Attributable to Risk Factors Modifiable after Menopause: Abstract of an article in Am J Epidemiol 2008(Aug 15); 168(4): 404-411. The last sentence of the Abstract: "These findings suggest that a substantial fraction of postmenopausal breast cancer may be avoided by purposeful changes in lifestyle later in life".

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    Information about BrCa risk #3 [links last verified 12 Apr 2009]:
    Recent changes in breast cancer incidence and risk factor prevalence in San Francisco Bay area and California women: 1988 to 2004: Article in Breast Cancer Research 2007(Sep 25); 9(5): R62.
    Differences in reproductive risk factors for breast cancer in middle-aged women in Marin County and a sociodemographically similar area of Northern California: BMC Women's Health 2009(Mar 25); 9(1): 6.

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    Information about BrCa risk #4 [links last verified 8 Aug 2008]:
    The Risk of Cancer Risk Prediction: "What Is My Risk of Getting Breast Cancer?": JNCI 2006(6 Dec); 98(23): 1673-75. An excerpt: "Current breast cancer risk prediction models perform well for populations but poorly for individuals"
    The privatization of risk: Abstract of an article by Beverly Rockhill in Am J Public Health 2001(Mar); 91(3): 365-8. An excerpt from the article: "...a risk factor is a probabilistic concept that applies to an aggregate of individuals, not to a specific individual."
    Sick individuals and sick populations: Abstract of an article by Geoffrey Rose in Int J Epidemiol 1985 Mar; 14(1): 32-8 (in the article, he describes the "Prevention Paradox": "A preventive measure which brings much benefit to the population offers little to each participating individual")

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    Information about the Gail model of BrCa risk #1 [links last verified 20 Sep 2008]:
    Breast Cancer Risk Calculator: Contains information about the 'Gail model', widely used for quantifying risk of breast cancer within a specified time in women at various ages and with certain risk factors. The first five factors taken into account are: (1) family history of breast cancer in first-degree relatives, (2) number of benign breast biopsies, (3) age at menarche, (4) age at first live birth, and, (5) current age. This particular version of a risk calculator also allows several additional factors to be taken into account [Caution: the utility and validity of such calculations, when used to predict risk for individuals, continues to be controversial]
    Projecting absolute invasive breast cancer risk in white women with a model that includes mammographic density: Abstract of an article in JNCI 2006(Sep 6); 98(17): 1215-1226. Conclusion: "This new model for absolute invasive breast cancer risk in white women promises modest improvements in discriminatory power compared with the Gail model but needs to be validated with independent data"
    Prospective breast cancer risk prediction model for women undergoing screening mammography: Abstract of an article in JNCI 2006(Sep 6); 98(17): 1204-1214. Excerpt: "The model may identify high-risk women better than the Gail model, although predictive accuracy was only moderate"

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    Information about BrCa risk reduction #1 [links last verified 1 Jan 2009]:
    Contralateral Prophylactic Mastectomy: Quantifying Benefits and Weighing the Harms: Editorial by Kathy J. Helzlsouer in J Clin Oncol 2005(1 July); 23(19): 4251-4253. An excerpt: "What should we be telling women concerning this procedure? We can, with confidence, tell women that a contralateral prophylactic mastectomy will reduce the risk of a second breast cancer by 87% to 99%. Women are also likely to have a reduction in breast cancer mortality; however, without additional investigation, the overall clinical benefit directly attributable to this procedure is less certain"
    Breast cancer prevention in women with a BRCA1 or BRCA2 mutation: Openly accessible article in Open Medicine, Vol 1, No 3 (2007)
    Women’s views on chemoprevention of breast cancer: Qualitative study: Openly accessible article in Can Fam Physician 2006(May 10); 52(5): 624-625. Excerpt from the Abstract: "Perceived risk of breast cancer was not correlated with actual risk or with likelihood of taking chemopreventive therapy"

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    Information about BrCa risk reduction #2 [links last verified 22 May 2009]:
    Understanding Estrogen Receptors/SERMs: From the NCI-US (last reviewed 1 September 2006)
    Study of Tamoxifen and Raloxifene (STAR) Trial: From the cancer.gov website of the NCI-US (last updated 12 September 2007)

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    Information about BrCa risk reduction #3 [links last verified 20 Jan 2009]:
    Behavioral Risk Factors in Breast Cancer: Can Risk Be Modified?: Review by Anne McTiernan in The Oncologist 2003(Aug); 8(4); 326-334.
    Age, Obesity, and Breast Cancer Risk: Louise Chang MD, WebMD, Nov. 27, 2006
    Lifetime recreational exercise activity and breast cancer risk among black women and white women: J Natl Cancer Inst 2005(Nov 16); 97(22): 1671-9.

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    Information about BrCa genetics #1 [links last verified 24 Feb 2009]:
    Understanding Gene Testing: A primer about genetics
    Women at high risk for breast cancer--what the primary care provider needs to know: J Am Board Fam Med 2009(Jan-Feb); 22(1): 43-50
    Genetic Risk Assessment and BRCA Mutation Testing for Breast and Ovarian Cancer Susceptibility: Recommendation Statement: Ann Intern Med 2005 (6 Sep); 143(5): 355-61

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    Information about BrCa genetics #2 [links last verified 20 Sep 2008]:
    Genetic Discrimination: Via the website for the National Human Genome Research Institute (USA)
    Genetic Testing for Breast and Ovarian Cancer Risk: It's Your Choice: From the National Cancer Institute (USA)

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    Some links about screening, mammography #1 [links last verified 12 Apr 2009]:
    About breast disorders: From the AMA Medical Library
    Mammography for Breast Cancer Screening: Harm/Benefit Analysis, Updated May 2007: Position statement on screening mammography from the National Breast Cancer Coalition (NBCC).
    Mammography Screening Controversy: Via the "Ourbodies Ourselves" website of the Boston Women's Health Book Collective, Inc (last revised Jan 2007).
    Breast Cancer Screening for Women in Their 40s: Moving from Controversy about Data to Helping Individual Women: Access is provided to an editorial in Ann Int Med 2007(3 Apr); 146(7): 529-31

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    Some links about screening, mammography #2 [links last verified 20 Sep 2008]:
    Global summit on mammographic screening: Editorial in Annals of Oncology 2003; 14: 1159-1160. Excerpt: "Mammographic screening is only one step in the total management of women with breast cancer. Too often it is assumed that breast cancer mortality rates will decrease through more mammographic screening. This goal can only be attained through rigorous, high-quality screening, diagnosis and treatment, whose role in reducing mortality is crucial".
    Psychological distress in U. S. women who have experienced false-positive mammograms: Abstract of article in Breast Cancer res Treat 2006(Nov); 100(2): 191-200

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    Some links about screening, mammography #3 [links last verified 26 Jun 2009]:
    Regular self-examination or clinical examination for early detection of breast cancer: Cochrane Review by JP Kösters and PC Gøtzsche (Last assessed as up-to-date: October 09, 2007)
    Controversy Over Breast Self-Examination: About the Cochrane Review by Jan Peter Kösters and Peter Gøtzsche (see above)
    When statistics provide unsatisfying answers: revisiting the breast self-examination controversy: Barron H. Lerner, CMAJ 2002(January 22); 166(2): 199-201

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    Organochlorines & BrCa #1 [links last verified 1 Jan 2009]:
    Review of the etiology of breast cancer with special attention to organochlorines as potential endocrine disruptors: Review in J Toxicol Environ Health B Crit Rev 2008(Mar); 11(3-4): 276-300. Excerpt: "The relationship between organochlorines and breast cancer risk has been studied extensively in the past decade and more, and at this point there is no clear evidence to support a causal role of most organochlorine pesticides in the etiology of human breast cancer, but more evidence is needed to assess risk associated with polychlorinated biphenyls (PCBs)". [Caution: this area of research continues to be controversial]
    Serum organochlorines and breast cancer: a case-control study among African-American women: Abstract of an article in Cancer Causes Control 2007(Feb); 18(1): 29-39. The final sentence of the abstract: "This study, the largest study of African-American women to date, does not support a role of DDE and total PCBs in breast cancer risk at the levels measured".
    Environmental Toxins and Breast Cancer on Long Island. II. Organochlorine Compound Levels in Blood: Abstract of an article in Cancer Epidemiol Biomarkers Prev 2002(Aug); 11(8): 686-97. An excerpt: "These findings, based on the largest number of samples analyzed to date among primarily white women, do not support the hypothesis that organochlorines increase breast cancer risk among Long Island women".

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    Organochlorines & BrCa #2 [links last verified 12 Apr 2009]:
    Urban Legend: Plastic-Tac-Toe: Via the snopes.com website: "Claim: Research shows that microwaving foods in plastic containers releases cancer-causing agents into the foods. Status: False"
    Don't Use Plastic for Heating Foods in a Microwave Oven Because of Exposure to Dioxins-Unproven! & Fiction!: Via the TruthOrFiction.com website
    Ukraine candidate 'was poisoned': BBC News, Dec. 11 2004. "The doctors said extensive tests showed a form of dioxin had been used, leaving Mr Yushchenko's face disfigured"
    Dioxin: Seveso disaster testament to effects of dioxin: Article by Mick Corliss, May 6, 1999

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    A few links about risk communication [links last verified 28 Oct 2008]:
    Communicating evidence for participatory decision making: Abstract of article in JAMA 2004(May 19); 291(19): 2359-66
    Use and misuse of population attributable fractions: Citation for an article by Beverly Rockhill and colleagues in Am J Public Health 1998(Jan); 88(1): 15-19. An excerpt from the full text: "The population attributable fraction does not address probability of causation for a specific case of disease, nor does its estimation enable epidemiologists to discriminate between those cases caused by, and those not caused by, the risk factors under consideration".

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    A few links about decision aids #1 [links last verified 18 Nov 2008]:
    Using decision aids to help patients navigate the "grey zone" of medical decision-making: Commentary by Annette M. O'Connor, CMAJ 2007(22 May) 176(11): 1597-98. Some key points about patient decision aids
    Alphabetical List of Decision Aids by Health Topic: Via the website of the Ottawa Health Research Institute
    Factors associated with patient involvement in surgical treatment decision making for breast cancer: Abstract of an article in Patient Educ Couns 2007(Mar); 65(3): 387-95. Excerpt: "Decision tools are needed across surgeons and practice settings to elicit patients' preferences for involvement in treatment decisions for breast cancer"

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    A few links about decision aids #2 [links last verified 28 Oct 2008]:
    Promoting informed choice: transforming health care to dispense knowledge for decision making: Abstract of an article in Ann Intern Med 2005(16 Aug); 143(4): 293-300
    Decision Tool Benefits Women Considering Adjuvant Chemotherapy for Breast Cancer: A press release in JNCI 2003(16 Apr); 95(8): 569
    Decision aids for people facing health treatment or screening decisions: Abstract of a review in Cochrane Database Syst Rev 2003; (2): CD001431

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    Information about various kinds of cancer #1 [links last verified 28 Oct 2008]:
    Cancer Topics: An excellent source of reliable information about cancer (from the NCI-USA)
    Cancer Information Service (CIS) in Canada: The telephone-based component of the Cancer Information Service of the Canadian Cancer Society can be reached at: 1-888-939-3333 (within Canada)
    Cancerbacup: A U.K.-based website

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    Information about various kinds of cancer #2 [links last verified 28 Oct 2008]:
    Patient/Public Info: Another source of reliable information about various types of cancer, from the BC Cancer Agency
    CancerLinks website: Maintained by Alexandra Andrews

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    Information about drugs #1 [links last verified 20 Jan 2009]:
    Drugs_at_FDA: A Catalog of FDA Approved Drug Products (can search by drug name or active ingredient).
    Drug Information: Via Medline Plus Health Information
    Side effects of specific chemotherapy drugs: Via the website of Cancer Research UK (last updated January 9, 2009)

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    Information about drugs #2 [links last verified 20 Jan 2009]:
    Drug Information Resource: Via the Drugs.com website
    RxList: "The Internet Drug Index"
    SafeMedication: Sponsored by the American Society of Health-System Pharmacists

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    Tobacco-related issues #1 [links last verified 26 Jun 2009]:
    Breast Cancer Risk Among Women Who Start Smoking as Teenagers: Abstract of an article in Cancer Epidemiol Biomarkers Prev 2005(Jan); 14(1): 61-6. "Compared with never smokers, women who smoked for at least 20 years and who smoked 10 cigarettes or more daily had a RR of 1.34 (95% CI, 1.06-1.70)" [Caution: a 34% increase in risk is not, from the perspective of an individual, a large increase, although it represents a substantial impact on a large population].
    Tobacco smoking NAT2 acetylation genotype and breast cancer risk: Abstract of an article in Int J Cancer 2006(15 Oct); 119(8): 1961-1969. "In conclusion, our data indicate that passive smoking is not associated with breast cancer risk; however, active smoking might be associated with an increased risk for early onset breast cancers".

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    Tobacco-related issues #2 [links last verified 24 Jun 2006]:
    Cancer Fact Sheets about Tobacco Use/Smoking: From the website of the NCI-US
    Tobacco: Information provided by the Canadian Cancer Society
    Tobacco-Related Cancer Fact Sheet: Via the ACS website

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    Cancer statistics #1 [links last verified 12 Apr 2009]:
    Canadian Cancer Statistics: Via the website of the Canadian Cancer Society
    Breast cancer stats [Canada]: Last modified 9 April 2009. Excerpt: "Breast cancer death rates have declined in all ages combined and in every age group since at least the mid 1990s"
    The Median Isn't the Message, by Stephen Jay Gould, via Steve Dunn's CancerGuide website. Stephen Jay Gould died (of a cancer unrelated to his previous one) on May 20, 2002, at age 60

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    Cancer statistics #2 [links last verified 24 Feb 2009]
    Global trends in breast cancer incidence and mortality 1973-1997: International Journal of Epidemiology, February 28, 2005. "Conclusions: Breast cancer incidence and mortality rates remain highest in developed countries compared with developing countries, as a result of differential use of screening mammograms and disparities in lifestyle and hereditary factors. Future studies assessing the combined contributions of both environmental and hereditary factors may provide explanations for worldwide differences in incidence and mortality rates"
    SEER Cancer Statistics: Outlines the kinds of cancer statistics that are available for the US population
    Statistics (USA): Via the website of the American Cancer Society. Includes access to cancer statistics for past years

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    Cancer statistics #3 [links last verified 1 Jan 2009]:
    About statistical concepts of the curability of breast-cancer: Three concepts of cure are defined--statistical, clinical and personal (PubMed abstract of a 1991 article by J.L. Haybittle)
    More about statistics on the curability of breast-cancer: Questions about the concept of cure (PubMed abstract of a 1975 article by J.L. Haybittle; "Haybittle" is misspelled)
    How to read a paper: Links to a series of papers in BMJ (includes "Statistics for the non-statistician")

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    About interactive health communication #1 [links last verified 26 Jun 2009]:
    Communication in Cancer World is Key to Survival: New Report Says Need is Greater as Information Grows: EurekAlert release, 19 Sep 2007
    Use and Impact of eHealth System by Low-income Women With Breast Cancer: Abstract of an article in J Health Commun 2005;10 Suppl 1:195-218. An excerpt: "We conclude that an eHealth system like CHESS will be used extensively and have a positive impact on low-income women with breast cancer"
    Evaluation of support groups for women with breast cancer: importance of the navigator role: A commentary of mine, published in the open-access journal Health and Quality of Life Outcomes 2003(May 1); 1: 16
    Cancer-related electronic support groups as navigation-aids: Overcoming geographic barriers: Eprint version of another commentary of mine, published in Journal of Cancer Integrative Medicine 2004(Winter); 2(1): 21-24

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    About interactive health communication #2 [links last verified 26 Jun 2009]:
    Read this OA article and call me in the morning: An item about "Information Therapy", posted to Peter Suber's Open Access News blog on July 9, 2007
    Internet research ethics: list mining, open access: A webpage of mine which includes information about advocacy for open access (OA) to peer-reviewed research publications (no longer updated, since 27 October 2007)

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    About interactive health communication #3 [links last verified 19 Mar 2009]:
    Open Access Newsletter: An excellent resource about "how the internet is transforming scholarly research and publication"
    Budapest Open Access Initiative: An initiative to accelerate progress in the international effort to make research articles in all academic fields freely available on the internet
    Be Openly Accessible or Be Obscure: A blog of mine, about topics relevant to the open access movement (established 20 November 2006)
    Open access journals in the health sciences: Via the Directory of Open Access Journals (DOAJ), Lund University

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    Links about "unconventional therapies" #1 [links last verified 8 Aug 2008]:
    Complementary/Integrative Therapies: Via a website of the M. D. Anderson Cancer Center, University of Texas
    Complementary therapies for cancer-related symptoms: Abstract of an article in J Support Oncol 2004(Sep-Oct); 2(5): 419-26. Excerpts: "Meditation, relaxation therapy, music therapy, and massage mitigate anxiety and distress". ... "Botanicals or dietary supplements are popular but often problematic"
    Complementary and Alternative Medicine During Cancer Treatment: Beyond Innocence: Abstract of an article in The Oncologist 2006(July); 11(7): 732-741. Excerpt: "Unfortunately, besides direct (and sometimes serious) side effects, several CAM ingredients are capable of interfering with the metabolism of concurrently used drugs, which may render the therapeutic outcome of the subscribed drug unpredictable".

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    Links about "unconventional therapies" #2 [links last verified 1 Jan 2009]:
    CAM on PubMed: Allows you to easily find journal citations related to complementary and alternative medicine (CAM)
    Unconventional Cancer Therapies: Via the website of the British Columbia Cancer Agency (revised December 2008)
    Psychological and behavioral mechanisms influencing the use of complementary and alternative medicine (CAM) in cancer patients: Annals of Oncology 2008; 19(1): 49-55. Excerpt from the abstract: "The primary factor for the stage of CAM use was the expectation from family".

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    Links about "unconventional therapies" #3 [links last verified 19 Mar 2009]:
    Complementary and Alternative Medicine: Information about 714X, cartilage (bovine & shark), hydrazine sulfate and various other unconventional therapies, via the Cancer.gov website of the NCI-US
    Familial and perceived risk of breast cancer in relation to use of complementary medicine: Abstract of an article in Cancer Epidemiol Biomarkers Prev 2008(Jun); 17(6): 1527-34
    Advice from an oncology nurse: About alternative therapies (link provided with her permission)

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    Links about herbal therapies #1 [links last verified 19 Mar 2009]:
    Information Resource: About Herbs, Botanicals & Other Products: Via the website of the Memorial Sloan-Kettering Cancer Center
    How to Know What Is Safe: Choosing and Using Dietary Supplements: Via the website of the American Cancer Society
    Adverse effects of herbs: Some known (or suspected) possible harms of herbal medicines

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    Links about dietary-related information #1 [links last verified 8 Aug 2008]:
    Nutritional Guidelines: Via the Memorial Sloan-Kettering Cancer Center website
    Homepage of the 5to10aday.com website: Facts about diet & cancer (available in English and French)
    Frequently Asked Questions: About nutrition information for cancer survivors, compiled by Diana Dyer, MS, RD

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    Links about dietary-related information #2 [links last verified 12 Apr 2009]:
    Dietary Supplements: Via the MedlinePlus site (last reviewed 10 March 2009).
    Office of Dietary Supplements (NIH-US): Provides access to searchable databases
    NutritionData: NutritionData.com is a member of the Condé Nast Publications family

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    A few links about soy-containing foods [links last verified 8 Aug 2008]:
    Addressing the Soy and Breast Cancer Relationship: Review, Commentary, and Workshop Proceedings: Abstract of an openly-accessible review in JNCI 2006(20 Sep); 98(18): 1275-1284. Excerpt: "Neither the existing animal nor human data allow definitive conclusions to be drawn about the effect of soyfoods or isoflavones on breast cancer risk in high-risk women and on the survival of breast cancer patients"
    Implications of Phytoestrogen Intake for Breast Cancer: CA Cancer J Clin 2007(Sep-Oct); 57(5): 260-277
    Soy and Breast Cancer: The Controversy Continues: Editorial in J Natl Cancer Inst 2006; 98: 430-431

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    Some links about 'humor therapy' #1 [links last verified 22 May 2009]:
    The Wit and Wisdom of Sue Hunter: Sue Hunter, an original and witty writer, was an active member of the breast cancer list for nearly four years until her death in May, 1999
    Puffie's Home Page: 'Puffie the Goldfish' was a sidekick and alter-ego of Sue Hunter
    Humor Therapy: Via Yahoo! Health (last updated June 27, 2007)

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    Health-related resources #1 [links last verified 19 Mar 2009]:
    Glossary: Via the Cancer Survivors On Line website (it's authors are members of an American "cancer cluster" family)
    Deciphering Medspeak: A dictionary of the specialized language of health professionals
    Lab Tests Online: Breast Cancer: Information about clinical lab testing (last reviewed March 24, 2008)

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    Health-related resources #2 [links last verified 26 Jun 2009]:
    Entrez: Provides access to PubMed, an excellent way to search for abstracts of research publications
    Open access journals in the health sciences: Via the Directory of Open Access Journals (DOAJ), Lund University
    Free Medical Journals : Promoting free access to medical journals
    The "Hardin MD" webpage: Free medical journals: PubMed search
    HighWire Press Lists: information about free access via journals published online with the assistance of HighWire Press

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    Health-related resources #3 [links last verified 26 Jun 2009]:
    Minority Health: Via the website of the Agency for Healthcare Research and Quality (USA)
    Cochrane Reviews: Abstracts of evidence-based reviews
    National Guideline Clearinghouse: Links to Patient Resources
    Classifications of Diseases: From the U.S. National Center for Health Statistics

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    Some Canadian organizations #1 [links last verified 8 Aug 2008]:
    The Canadian Cancer Society: Canada's premier community-based, non-governmental, non-profit anti-cancer organization
    The Terry Fox Foundation: Established in memory of a heroic young Canadian
    Canadian Breast Cancer Research Alliance : Canada's unique breast cancer research partnership

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    Some Canadian organizations #2 [links last verified 26 Jun 2009]:
    The Canadian Breast Cancer Network (CBCN): An influential Canadian breast-cancer advocacy network
    Wellspring: A network of support centers for cancer patients and their families, based in Southern Ontario (and Calgary)
    The Canadian Partnership Against Cancer: An independent corporation charged with accelerating action on cancer control across Canada
    Cancer Advocacy Coalition of Canada: Provides access to some interesting "report cards" about the state of cancer care in Canada

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    Ways to translate a webpage [links last verified 18 Nov 2008]:
    For a translation (by a computer, so it's not exact!) of the contents of a webpage from (for example) English into several other languages, please try entering it's URL into the webpage at:
    http://babelfish.altavista.com/translate.dyn

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    About this website's editor, and his interests:
    My photo (and research interests): Via a (sometimes unavailable!) website at the University of Toronto
    My Research Ethics webpage: Contains links to sets of notes about the ethics of online research, research priorities, and genetics research
    An online resume: Via the COS Expertise website

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    Please read this disclaimer:
    Disclaimer:

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